Invisible Illness Awareness Week

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Invisible Illness – What You Need to Know The Center for Disease Control estimates that around 117 million adults live with a chronic illness. Many of those illnesses are referred to as an invisible illness because they cannot be detected by the untrained eye… even then, it can be difficult to spot. Isolation Many patients live silently with their…

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BioExperience

Last week I (along with several other advocates) was given the amazing opportunity to tour Janssen’s labs where they produce Remicade. It was an absolutely incredible experience and today I want to tell you a little bit about it and how it was a big eye-opener for me. Upon meeting several Janssen employees and the president, Michael Yang, the…

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The False Sense of Security in Diagnosis

This past week on the 16th, I hit a milestone. I have officially been diagnosed with ulcerative colitis for five years now. It’s hard to believe that much time has gone by since then. A lot has changed in my life. I have changed. I went through my Facebook posts of life post-diagnosis. I was very naive. Being told that…

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The Dangers of Miracle Cures

“I drank coconut juice for two weeks and cured my Crohn’s Disease!” “My cousin cured his colitis by taking slippery elm!” “When I cut out dairy, it cured my IBD!!!” How many of you have heard phrases similar to these? If I’ve heard it once, I’ve heard it a dozen times. Have you tried…? It will CURE you! All these “cures” and home…

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