Invisible Illness Awareness Week

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Invisible Illness – What You Need to Know The Center for Disease Control estimates that around 117 million adults live with a chronic illness. Many of those illnesses are referred to as an invisible illness because they cannot be detected by the untrained eye… even then, it can be difficult to spot. Isolation Many patients live silently with their…

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Anonymously Brave: Poo is Taboo

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Anonymously Brave: Poo is Taboo This week my story was featured on the Today Show’s website and Facebook page. The week before last, Susan James called me for an interview. At the time, I didn’t think much of it… I’ve been interviewed before, but most of those interviews were for smaller, lesser-known websites. Never anything so well-known as the…

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The Importance of a Medical Alert ID

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Medical Alert IDs Today I want to write about something that has been on my mind for a while: Medical ID Cards and Medical ID Jewelry. I highly recommend you consider investing in a Medical Alert ID of some kind. After being diagnosed with ulcerative colitis, it never occurred to me to consider carrying around a list of medications. Let alone a…

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Patient-Driven Research. What!?

If you’re like me, when you think about research, you think of doctors and scientists that are higher up in the hierarchy of life who come up with the areas of research, conduct the studies and then come back and inform us of the results. Very disconnected. Oftentimes I feel like an outsider looking in. At least there’s research…

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